We need your ideas to optimize participation in Alzheimer's clinical trials and studies!
As research expands and accelerates to meet the national goal of preventing and effectively treating Alzheimer's disease by 2025, the need for research participants is reaching a critical point. Recruiting and retaining diverse populations of volunteers in a wide array of studies has become a leading challenge in our progress toward a cure. To address this need, over the past year, a group of stakeholders in the Alzheimer's research community, led by the National Institute on Aging with facilitation by the Alzheimer's Association, has been exploring the question of how we can expand and diversify participation in Alzheimer's and related dementias clinical studies. We aim to develop a national strategy to guide and align the efforts of the many organizations engaged in this work.
Now, we are seeking ideas from the wider community - advocates, clinicians, people with dementia, family members, caregivers, researchers, and site coordinators - about how to overcome barriers and optimize participation in Alzheimer's research. Please let us hear from you!
We are looking for ideas on the following topics. Click the links to learn more:
- Optimizing Clinical Studies Recruitment
How can we improve recruitment and retention in Alzheimer's clinical studies?
- Raising Awareness
How can we raise awareness about and encourage participation in Alzheimer's research?
- Building Relationships with Local Communities
How can local study sites build trusting relationships in their communities to reach and include diverse populations in Alzheimer's research?
- Enhancing Study Site Capacity
What do study sites need to be able to reach and enroll more participants and ensure diversity?
- Developing Data,
How can we gather data, set a baseline, and measure progress in Alzheimer's research participation?
- Cultivating a Science of Recruitment
How can we develop a science of recruitment?