There is a significant need to support patients with Alzheimer’s disease and related dementias and their families with health care planning towards the end of life. Notably, there is a need to provide consistent support and education during the planning process. Health care providers must do more to provide this needed education and support. One such idea is to improve the coordination of care via a high-level education and support (coaching) program. This process (consultation) will be initiated by the patient and/or family caregiver in conjunction with the physician or nurse practitioner provider. Up-to-date access to these conversations will be available electronically for the patient and/or family caregiver, and healthcare provider to access as needed. These candid conversations will be conducted ideally face-to-face, with video conferencing options available. This advanced health care coaching program will support patients and/or families in having these important conversations and provide assistance with document completion as requested. This program will be especially tailored to meet the unique needs of under-represented, marginalized minority patients and families towards improving end-of-life care outcomes that support the wishes of patients and families facing Alzheimer’s disease and related dementias.
Idea No. 341