Clinical trials are foreign to patients and caregivers. More education about the trials, what it means to be involved, privacy issues and ability to exit the trial at any time needs to be communicated more directly to the desired sample subjects. I am a volunteer Alzheimer's Association Community Educator. I always briefly discuss the trials and potential benefit of involvement. However, it is then left to the person to look up the clinical trials website and wade through the search. The trials needs to be more widely "advertised" in a manner that is understandable, accessible and appealing to the lay public.
Idea No. 92