Alzheimer’s disease is the most prevalent but it is only one of several neurodegenerative diseases that lead to dementia. The heterogeneity among types of dementia and people impacted is part of what makes dementia care such a challenge for the US Healthcare system. For those facing one of the “related dementias” like frontotemporal degeneration (FTD) the challenge is compounded by the fact that most people and many medical ...more »
Optimizing NIA’s Eureka Prize Competition Topic
We need your thoughts to optimize our intended Eureka Prize Competition on using technology to improve care for people living with Alzheimer’s disease and related dementias.
Navigating the complex US healthcare system can be challenging for people living with Alzheimer’s disease (AD) and related dementias (ADRD) and their caregivers. They must pursue an uncertain course of care of unknown duration across different care settings and interact with many different types of care providers and many different types of interventions. Models of dementia care have evolved in recent years and have the potential to improve outcomes. Barriers to adoption, however, include but are not limited to workforce limitations, the cost of practice redesign, and limited uptake by insurers and health systems.
The goal of our intended prize competition is to yield innovations that improve the quality of care for people living with AD/ADRD by establishing a proof of concept for the creation of a widely accessible and innovative technology tool(s) that addresses unmet needs in care coordination and/or care navigation through the health system. The concepts generated in this prize competition may be targeted at consumers (patients, caregivers), healthcare providers, healthcare service organizations, and/or health systems, and/or community, local, or state government, and will ideally foster connections between these stakeholders. For example, a collaboration between a technology company, EHR vendor and nursing home chain could yield EHR-based methods to improve care coordination.
We are looking for your ideas on the following topics as well as other related input that you would like to share:
• The possibility that this prize activity duplicates other ongoing activities in any relevant sector (e.g., academia, business)
• Attractiveness of this question to a broad audience of possible solvers
• The length of time solvers would need to develop a prize submission
• Metrics that judges might use to identify a winner
Caregiving can be a difficult change in the lives of those who care for loved ones. Transitions is a concept that would aid dementia/Alzheimer's caregivers, and any other caregivers with family members facing a debilitating health diagnosis, in their journey by providing an inclusive space to find tools, resources and information. An individualized plan would be created for each caregiver based on their current needs. ...more »
This prize needs to take into account the fact that Alzheimers is not the only dementia (there are about 100 types so far described) & the fact that people who are too young to be eligible for Medicare & Medicaid (65+ years old) get dementias. My late father had a combination of FTD & CTE (he was a military veteran) and I gave him full time unpaid care at home from ages 36 - 46. 1 out of 4 caregivers is a millennial & ...more »
Problem statement: Despite the nature of dementia with several stages of progression, there is lack of robust communication system allowing up to date, real-time information that both medical professionals and care providers can monitor patients' health. Challenge: Developing a shared restricted database that includes CT scan record results, neurological tests, and medical interpretations from physicians, and care providers' ...more »
One older adult says “I am not hungry,” but if this person has a severe cognitive impairment, how can we ensure that this person is physiologically hungry? Often, hunger and thurst levels of people with dementia may not be accurately accessed and care providers are challenged to interpret patients’ needs. Anterior pituitary gland (i.e., stimulated by Hypothalamus which release thirst related hormones) regulates thirst ...more »
People often experience elusive communication in a way with patients’ dementia. To address the difficulties in understanding people with dementia speaking, through the communication device (e.g., similar to the device that Stephen Hawking used or supercomputer or iPhone Siri) will allow clearer judgment to understand the needs of patients with dementia. This approach is innovative because the device can 1) prolong ...more »
This past week I went in search of a physician who could assist me with a cognitive assessment in Nassau County. I reached out to one of my Geriatricians in the county who was immediately able to access my client's records, see his history and refer me to the appropriate Neuropsychologist. While I'm sure connecting records on a national level may be a daunting task - this process worked so expeditiously that I believe ...more »
There is a significant need to support patients with Alzheimer’s disease and related dementias and their families with health care planning towards the end of life. Notably, there is a need to provide consistent support and education during the planning process. Health care providers must do more to provide this needed education and support. One such idea is to improve the coordination of care via a high-level education ...more »
With most providers utilizing several different electronic health records and results from visits not share in the appropriate time frame. Or one shared patient portal related to his/her Alzheimer appointment. Recently has to take my family member to an urgent care facility as her PCP doesn't have weekend hours and we were at this appointment for five hours. My family member was severely dehydrated and required an ...more »
An online group will allow caregivers to share ideas and support one another.
Suggestion category: Low-cost innovations to improve AD/ADRD care. Reason for entry: While the "ideas" site is for RFIs about the best ways to structure and frame the NIA's Eureka grant, this "application-like" idea attempts to motivate the NIA to focus the grant on gaps in assistive technology which make care giving challenging and unnecessarily costly. Drug therapies and more recently Internet-based information systems ...more »
Publicly funded academic efforts to research and develop software technologies frequently suffer from the following hindrances to wide market adoption: 1. They result in open source tools which require expertise to install, configure, and use (e.g., see the myriad of open source, complex tools for bioinformatics and genomics, or most python-based solutions). 2. Support and maintenance are often left to the end user, ...more »