Building Relationships with Local Communities

Building Relationships with Local Communities

How can study sites build trusting relationships in local communities?

Goal: To increase recruitment and retention of participants into Alzheimer’s and dementia research at the local level, focusing on inclusivity and diversity in age, race, ethnicity, sex, education, income, urban-rural demographics, and cognitive status (asymptomatic, MCI, AD and related dementias).

Ideas in this area might address:

  • Planning for diversity and inclusion
  • Building and sustaining relationships with community partners
  • Community collaboration on research design
  • Study design to facilitate participation
  • Overcoming barriers
  • Systems and infrastructure to support inclusive outreach
  • Role of funders, organizations, policymakers in implementing

Building Relationships with Local Communities

Submitted by (@margot)

Support First

I recommend creating dementia support groups. Many of us are skidish about trials because they often involve untried medications. It’s also very difficult to get our family members to agree to do anything apart from what is advised specifically by their doctor. Meeting in groups where all kinds of behaviors, coping skills, and options are discussed would make me feel more comfortable about steering my husband in one ...more »

Voting

5 votes

Building Relationships with Local Communities

Submitted by

Provide transportation to study site

People struggling with poverty can be a difficult group to access for studies for a variety of reasons. One of those is the difficulty they face if their normal modes of transportation are unreliable or incompatible with appointment times. If the study arranges and pays for Uber, Lyft, or taxi service allows the study participant to take the least amount of time away from other responsibilities, and reduces a potential ...more »

Voting

15 votes

Building Relationships with Local Communities

Submitted by (@localdiversegrp)

Demonstrate attention and commitment to participants

Provide participants with individualized and genuine attention and demonstrate commitment to ongoing outreach. Enlist a research navigator, ideally from local or targeted community, to assist with recruitment, and assist participants through all phases of screening, enrollment, and research.

Voting

10 votes