Examine the motivators, barriers, and facilitators to enrolling and remaining in a registry until invited to be considered for a study. Identify methods that influence a registry enrollee to participate in a study, including an analysis of how participants’ cognitive and functional status, demographics and other variables influence their registry behavior.
Cultivating Recruitment Science
What research questions do we need to answer about recruitment?
To continue to enhance effectiveness of recruitment efforts and improve tools, research methods, and recruitment practices, it is critical that we build the evidence base for a "science of recruitment." This evidence base can build the case for proven recruitment techniques and guide future study design, recruitment plans, and decision-making.
Ideas in this area might address:
- Identifying and characterizing target audiences
- Developing and testing audience-specific strategies and tactics
- Identifying gaps in knowledge about recruitment strategies and implementation
- Evaluating recruitment strategy success
- Developing a robust evidence base for recruitment strategies and a science of recruitment
A patient or want-to-be patient who has been out of healthcare, for some reason, and enters Medicare or a plan feeling or actually late may, if sensing neurological health deserves attention, be at a loss what to try to do first/early.
Assess the use of social networks, crowd sourcing and other digital environments, like disease forums, that would facilitate “pre-recruitment” discussions about the state of the science related to Alzheimer’s, improving awareness and inspiring curiosity about registries or clinical studies.
Assess the state of the field, with respect to current approaches, modalities, space, and performance. Look at registries in the context of their utility for recruitment to small studies as well as for large multi-site trials and national surveys. Identify best practices in recruiting and retaining registry volunteers for prolonged periods.
In order to ensure minority groups are represented, the NIH could incentivize researchers for achieving recruitment quotas proposed in their application. The incentive does not need to be money but it could be training or other resources.
The goal of my dissertation is to identify the policy, system, organizational, and personal factors that facilitate, bar, and motivate ADRD community members to participate in clinical trials. My first stage is establishing a community advisory board comprised of ADRD professionals (clinicians, investigators/research assistants, and advocates) and people with ADRD and their care partners (including Black/African-American ...more »
Develop a way to assess the recruitability of varying protocols. Such analyses could examine trial design, availability of infrastructure or off-site entities to support imaging and other off-site technologies and clinical specialties, and diversity/special population issues that could pose access-limiting challenges.
The testing that is available presently is for identify mild, moderate, or advanced ALZ. There have recently been limited research to see if the sooner a person is identified and treatment begins the slower the disease progresses.
Need research to develop tests to identify earlier symptoms of the disease.
It strikes me that recruiting for trials is very similar to the process used to market any product or service. I really recommend engaging a strong marketing partner. It's all about the funnel. First, identifying the target market (who do we want to recruit), then determining how to best reach them. In order to get one person out the end of the funnel (meaning into a clinical study), how many need to be "interested" ...more »
With each successful clinical study recruitment effort, the lessons learned should be added to a national list of best practices. The same goes for unsuccessful recruitment efforts in discovering what did not work and why. These best practices must be shared online in a way that is easily searchable (e.g. recruitment promotion, study materials, phone screening, etc.) so that study teams can create their plan using the ...more »
Just like we see in drug stores and some big box stores what about a chair with a touch screen? The participant sits down, accepts the terms, and begins the test. It could be a condensed set of questions that screen for early signs of cognitive decline with a score at the end. The constraints could regard age, or showing ID to a pharmacist first without having to enter identifying information in the "data chair". A ...more »
Assess the feasibility of successfully engaging specific audience segments. This should be approached with short, intermediate and long-term goals in mind to fashion and implement effective national outreach.
Preparing populations to better cope with brain disorders should begin at a young age. School curriculums world-wide need to be modified to include a spiral up awareness about the brain and its disorders. One cannot expect a 6 year to comprehend the same level as a 16-year-old, but this doesn’t mean that brain education cannot be presented to 6-year-olds. It is just needs to be structured to correspond to their level ...more »
Apply formative research, including such techniques as behavioral mapping and behavioral analysis to identify major factors, including barriers and facilitators, to help determine the likelihood that people in a particular audience will engage in sought-after behaviors involved in participating in research.
Explore how the “Internet of Things,” with its sensory technologies, augmented reality, and machine-learning algorithms might be used to understand the personal needs of each research participant and to optimize engagement in research activities.