Just like we see in drug stores and some big box stores what about a chair with a touch screen? The participant sits down, accepts the terms, and begins the test. It could be a condensed set of questions that screen for early signs of cognitive decline with a score at the end. The constraints could regard age, or showing ID to a pharmacist first without having to enter identifying information in the "data chair". A ...more »
Cultivating Recruitment Science
What research questions do we need to answer about recruitment?
To continue to enhance effectiveness of recruitment efforts and improve tools, research methods, and recruitment practices, it is critical that we build the evidence base for a "science of recruitment." This evidence base can build the case for proven recruitment techniques and guide future study design, recruitment plans, and decision-making.
Ideas in this area might address:
- Identifying and characterizing target audiences
- Developing and testing audience-specific strategies and tactics
- Identifying gaps in knowledge about recruitment strategies and implementation
- Evaluating recruitment strategy success
- Developing a robust evidence base for recruitment strategies and a science of recruitment
Preparing populations to better cope with brain disorders should begin at a young age. School curriculums world-wide need to be modified to include a spiral up awareness about the brain and its disorders. One cannot expect a 6 year to comprehend the same level as a 16-year-old, but this doesn’t mean that brain education cannot be presented to 6-year-olds. It is just needs to be structured to correspond to their level ...more »
It strikes me that recruiting for trials is very similar to the process used to market any product or service. I really recommend engaging a strong marketing partner. It's all about the funnel. First, identifying the target market (who do we want to recruit), then determining how to best reach them. In order to get one person out the end of the funnel (meaning into a clinical study), how many need to be "interested" ...more »
Assess the state of the field, with respect to current approaches, modalities, space, and performance. Look at registries in the context of their utility for recruitment to small studies as well as for large multi-site trials and national surveys. Identify best practices in recruiting and retaining registry volunteers for prolonged periods.
Steps: 1) Identify salient beliefs, attitudes, values, and perceived behavioral norms and/or incentives (monetary and non-monetary) likely to affect whether people in various audiences are motivated – or not -- to join in research. 2) Articulate major barriers to participation in dementia research in each audience segment, especially among underrepresented groups. 3) Find out what key influencers, such as disease advocates, ...more »
Invest in site specific outreach campaigns to GPs and specialists in the vicinity of a clinical trial site for generating awareness and to promote referral from the clinical setting.
A patient or want-to-be patient who has been out of healthcare, for some reason, and enters Medicare or a plan feeling or actually late may, if sensing neurological health deserves attention, be at a loss what to try to do first/early.
In order to ensure minority groups are represented, the NIH could incentivize researchers for achieving recruitment quotas proposed in their application. The incentive does not need to be money but it could be training or other resources.
Examine the development of a computer-based simulation laboratory that could model behaviors of potential research participants, study partners, clinicians, researchers, community based supports and others, so that virtual studies could be conducted to gain insights into the potential efficacy of proposed recruitment strategies.
Test, whenever possible, the effectiveness of messaging and incentives for participation for varying audiences (patients, study partners and clinicians, specifically) and study types (e.g. dementia vs. prevention trials). Evaluate the relative advantages and disadvantages of different strategies on motivation and action toward research participation.
The goal of my dissertation is to identify the policy, system, organizational, and personal factors that facilitate, bar, and motivate ADRD community members to participate in clinical trials. My first stage is establishing a community advisory board comprised of ADRD professionals (clinicians, investigators/research assistants, and advocates) and people with ADRD and their care partners (including Black/African-American ...more »
Assess clinicians’ knowledge, interest and hesitance in telling patients about or referring them to clinical studies, generally and specifically for dementia.