Building Relationships with Local Communities

Building Relationships with Local Communities

How can study sites build trusting relationships in local communities?

Goal: To increase recruitment and retention of participants into Alzheimer’s and dementia research at the local level, focusing on inclusivity and diversity in age, race, ethnicity, sex, education, income, urban-rural demographics, and cognitive status (asymptomatic, MCI, AD and related dementias).

Ideas in this area might address:

  • Planning for diversity and inclusion
  • Building and sustaining relationships with community partners
  • Community collaboration on research design
  • Study design to facilitate participation
  • Overcoming barriers
  • Systems and infrastructure to support inclusive outreach
  • Role of funders, organizations, policymakers in implementing

Building Relationships with Local Communities

Submitted by (@natlefforts)

Evaluate incentives

Pay attention to the development, testing and application of incentives for participating in research. A variety of approaches, such as compensation for lost time or wages at work, charitable donations, gift cards, and cost savings services, could be considered. Evaluation should examine both positive and negative implications of incentive strategies on participation behaviors.

Voting

25 votes

Building Relationships with Local Communities

Submitted by (@localdiversegrp)

Use data to assess community needs

Gather existing data on the local and targeted community, including: available CMS data on AD prevalence by county level; census data on race, ethnicity, education, religion, and geographic distributions; publicly available community health assessments. Complement data with qualitative reports to account for individuals with low health-seeking behavior.

Voting

5 votes

Building Relationships with Local Communities

Submitted by (@localdiversegrp)

Identify community partners

Identify and meet with available support services for referrals and recruitment partners (social services, clinical services, behavioral health, assisted living facilities, faith groups, legal, Area Agencies on Aging, city Office on Aging, AARP, those living with dementia, etc.), with a view towards leveraging existing networks to reach vulnerable populations. Identify a minimum of 1 to 2 key stakeholder collaborators ...more »

Voting

20 votes

Building Relationships with Local Communities

Submitted by (@localdiversegrp)

Actively develop community partnerships

Attend community events as guests (not speakers) to learn more about the community and its leaders/stakeholders. Host presentations to introduce your organization to the local community, and the proposed tactics and tools for outreach. Develop an effective communication strategy to support ongoing, bidirectional flow of information with local community. Work with community partners to prioritize needs and develop responsive ...more »

Voting

6 votes

Building Relationships with Local Communities

Submitted by (@localdiversegrp)

Identify Culturally-Appropriate Messengers and Outreach Channels

Using information from the community needs assessment and input from community partners, identify best-fit modalities for information delivery (messengers) and appropriate/effective communications channels for each of the targeted communities (e.g., for Hispanics, for men, for adults with MCI), to include face-to-face activities, radio, newsletters, faith-based events, etc. Identify community champions (spokespersons) ...more »

Voting

6 votes

Building Relationships with Local Communities

Submitted by (@localdiversegrp)

Develop communications tools

Develop a document with key information about the impact of AD in each of the targeted communities, and information about the research project for lay and for professional audiences. Develop a listing of local media outlets (e.g., minority-owned or -focused media outlets and publications, local television stations, rural newspapers or radio shows, support groups, church gatherings, health fairs and events). Develop and ...more »

Voting

6 votes