Preparing populations to better cope with brain disorders should begin at a young age. School curriculums world-wide need to be modified to include a spiral up awareness about the brain and its disorders. One cannot expect a 6 year to comprehend the same level as a 16-year-old, but this doesn’t mean that brain education cannot be presented to 6-year-olds. It is just needs to be structured to correspond to their level ...more »
Cultivating Recruitment Science
What research questions do we need to answer about recruitment?
To continue to enhance effectiveness of recruitment efforts and improve tools, research methods, and recruitment practices, it is critical that we build the evidence base for a "science of recruitment." This evidence base can build the case for proven recruitment techniques and guide future study design, recruitment plans, and decision-making.
Ideas in this area might address:
- Identifying and characterizing target audiences
- Developing and testing audience-specific strategies and tactics
- Identifying gaps in knowledge about recruitment strategies and implementation
- Evaluating recruitment strategy success
- Developing a robust evidence base for recruitment strategies and a science of recruitment
Invest in site specific outreach campaigns to GPs and specialists in the vicinity of a clinical trial site for generating awareness and to promote referral from the clinical setting.
The goal of my dissertation is to identify the policy, system, organizational, and personal factors that facilitate, bar, and motivate ADRD community members to participate in clinical trials. My first stage is establishing a community advisory board comprised of ADRD professionals (clinicians, investigators/research assistants, and advocates) and people with ADRD and their care partners (including Black/African-American ...more »
Survey past and ongoing clinical trials. what has gone wrong? and how to avoid it? Create an open forum for discussion of their failures and potential solutions for future recruitment efforts. Define variables to assess how effective recruitment strategies are.
Just like we see in drug stores and some big box stores what about a chair with a touch screen? The participant sits down, accepts the terms, and begins the test. It could be a condensed set of questions that screen for early signs of cognitive decline with a score at the end. The constraints could regard age, or showing ID to a pharmacist first without having to enter identifying information in the "data chair". A ...more »
In order to ensure minority groups are represented, the NIH could incentivize researchers for achieving recruitment quotas proposed in their application. The incentive does not need to be money but it could be training or other resources.
The testing that is available presently is for identify mild, moderate, or advanced ALZ. There have recently been limited research to see if the sooner a person is identified and treatment begins the slower the disease progresses.
Need research to develop tests to identify earlier symptoms of the disease.
Stress the early screening available and possible early medication to slow the disease. Many people want to dismiss their symptoms ad lose time for treatment to get staryed.
It strikes me that recruiting for trials is very similar to the process used to market any product or service. I really recommend engaging a strong marketing partner. It's all about the funnel. First, identifying the target market (who do we want to recruit), then determining how to best reach them. In order to get one person out the end of the funnel (meaning into a clinical study), how many need to be "interested" ...more »
A patient or want-to-be patient who has been out of healthcare, for some reason, and enters Medicare or a plan feeling or actually late may, if sensing neurological health deserves attention, be at a loss what to try to do first/early.
Many people have no clue what it means to participate in a research study. As we age, we learn by doing. The best way to get buy in from the community is to walk them through the stages of actual research. A small group would be terecruited to move through the different phases of the proposed research in an open forum.
Specific target participants have something in common - I think about the largest unviverse of subjects will be related to where the get their money or what they spend their money on. For example many may access the same financial support system such as SS Disability, some may take the same medication,. What they have in comon can drive where the study will look for participants. There are intelligence target marketing ...more »
With each successful clinical study recruitment effort, the lessons learned should be added to a national list of best practices. The same goes for unsuccessful recruitment efforts in discovering what did not work and why. These best practices must be shared online in a way that is easily searchable (e.g. recruitment promotion, study materials, phone screening, etc.) so that study teams can create their plan using the ...more »
Develop a way to assess the recruitability of varying protocols. Such analyses could examine trial design, availability of infrastructure or off-site entities to support imaging and other off-site technologies and clinical specialties, and diversity/special population issues that could pose access-limiting challenges.
Test models that move clinical research from the site to the community to lower barriers for volunteering. Consider use of mobile units, home or other residential settings, online assessments, satellite offices, and telemedicine, and seek flexibility from the study sponsors or health authorities.