Suggestion category: Low-cost innovations to improve AD/ADRD care. Reason for entry: While the "ideas" site is for RFIs about the best ways to structure and frame the NIA's Eureka grant, this "application-like" idea attempts to motivate the NIA to focus the grant on gaps in assistive technology which make care giving challenging and unnecessarily costly. Drug therapies and more recently Internet-based information systems ...more »
With most providers utilizing several different electronic health records and results from visits not share in the appropriate time frame. Or one shared patient portal related to his/her Alzheimer appointment. Recently has to take my family member to an urgent care facility as her PCP doesn't have weekend hours and we were at this appointment for five hours. My family member was severely dehydrated and required an ...more »
Innovations in dementia care and support might be assessed against the following Likert scales: 1 = Not credible or convincing; 3 = Neutral; 5 = Very credible and convincing 1. The specific customer/stakeholder is clearly defined 2. The problem this customer is having is clearly described 3. This solution is clearly better (creates new value) than what exists now for this problem 4. The innovation/solution being proposed ...more »
This past week I went in search of a physician who could assist me with a cognitive assessment in Nassau County. I reached out to one of my Geriatricians in the county who was immediately able to access my client's records, see his history and refer me to the appropriate Neuropsychologist. While I'm sure connecting records on a national level may be a daunting task - this process worked so expeditiously that I believe ...more »
Preparing populations to better cope with brain disorders should begin at a young age. School curriculums world-wide need to be modified to include a spiral up awareness about the brain and its disorders. One cannot expect a 6 year to comprehend the same level as a 16-year-old, but this doesn’t mean that brain education cannot be presented to 6-year-olds. It is just needs to be structured to correspond to their level ...more »
After completing a clinical trial, whether you are or are not a candidate to continue, be given the trial tests and evaluation to keep in confidence for future trials and research so you can see the progression or decline of the studies
Primary Care Physicians should have the knowledge and tools about clinical trials and research to advise a patient with Alzheimer's or a family history of Alzheimer's. At one time I was interested in getting genetically tested, but my doctor was not encouraging the idea.
Form a plan to reach out to religious groups. Often these groups comprise altruistic, compassionate persons who want to make a difference in their communities and world, and who want to support organizations that also have that aim. Ask to speak to interfaith groups such as local Ministerial Alliance and Church Women United meetings. Ask to speak to individual denominational meetings (although I suspect the interfaith ...more »
A preliminary ALZ test could be part of the HS testing. Early onset could perhaps be more easily identified. ALZ awareness would also be enhanced.
Clinical trial data is widely considered "safe" data and individuals who join a trial may want their identity protected. However, for trials administered through individual doctor's offices or small clinics, the identity of people may be held in office computers. I suggest that a highly secure IT solution for protecting identity at this level be sought.
It can be difficult for a healthy individual to join a trial when their spouse works full time. Not only does the person have to take time from work which they may be very motivated to do, but it is very restrictive to have to have someone who doesn't work full time available to go to every appointment with them.
Invest in site specific outreach campaigns to GPs and specialists in the vicinity of a clinical trial site for generating awareness and to promote referral from the clinical setting.
Many insurance companies will not pay for any medical issues for someone who participated in one or more clinical trials. Right now the insurance company can deny coverage for a health issue they say may be due to participation in clinical trials. This should not be allowed. No one who is brave enough to participate in a clinical trial should have to pay for medical care that would have been covered had they not participated ...more »
Raise awareness on the importance of brain health through celebrity driven awareness campaigns. Much like the Selena Gomez campaign on Lupus nephritiis, institute a celebrity driven campaign for AD targeted towards the 50+ population
Set up a newspaper based advertisement with regular frequency in a section that targets the 50+ population to raise awareness on the importance of brainhealth.