One older adult says “I am not hungry,” but if this person has a severe cognitive impairment, how can we ensure that this person is physiologically hungry? Often, hunger and thurst levels of people with dementia may not be accurately accessed and care providers are challenged to interpret patients’ needs. Anterior pituitary gland (i.e., stimulated by Hypothalamus which release thirst related hormones) regulates thirst ...more »
All day TV program talking with patients getting them to interact. Maybe music that people in their 70-80s would enjoy along with the words. Have the "host" talking to the person directly. In a nursing home environment little interaction due to costs, this would be everything from exercises to questions about food and places visited.
Currently, Clinicaltrials.gov is the database featuring all clinical trials. Unfortunately, it is written in clinical-speak, making it hard to locate and detemine what clinical trials are available for participation. I suggest a simple app be created that combs the Clinicaltrials.gov database for recruiting trials based on the stage of Alzheimer's disease. This would expedite the search and allow patients and caregivers ...more »
Suggestion category: Low-cost innovations to improve AD/ADRD care. Reason for entry: While the "ideas" site is for RFIs about the best ways to structure and frame the NIA's Eureka grant, this "application-like" idea attempts to motivate the NIA to focus the grant on gaps in assistive technology which make care giving challenging and unnecessarily costly. Drug therapies and more recently Internet-based information systems ...more »
With most providers utilizing several different electronic health records and results from visits not share in the appropriate time frame. Or one shared patient portal related to his/her Alzheimer appointment. Recently has to take my family member to an urgent care facility as her PCP doesn't have weekend hours and we were at this appointment for five hours. My family member was severely dehydrated and required an ...more »
Innovations in dementia care and support might be assessed against the following Likert scales: 1 = Not credible or convincing; 3 = Neutral; 5 = Very credible and convincing 1. The specific customer/stakeholder is clearly defined 2. The problem this customer is having is clearly described 3. This solution is clearly better (creates new value) than what exists now for this problem 4. The innovation/solution being proposed ...more »
This past week I went in search of a physician who could assist me with a cognitive assessment in Nassau County. I reached out to one of my Geriatricians in the county who was immediately able to access my client's records, see his history and refer me to the appropriate Neuropsychologist. While I'm sure connecting records on a national level may be a daunting task - this process worked so expeditiously that I believe ...more »
Preparing populations to better cope with brain disorders should begin at a young age. School curriculums world-wide need to be modified to include a spiral up awareness about the brain and its disorders. One cannot expect a 6 year to comprehend the same level as a 16-year-old, but this doesn’t mean that brain education cannot be presented to 6-year-olds. It is just needs to be structured to correspond to their level ...more »
After completing a clinical trial, whether you are or are not a candidate to continue, be given the trial tests and evaluation to keep in confidence for future trials and research so you can see the progression or decline of the studies
Primary Care Physicians should have the knowledge and tools about clinical trials and research to advise a patient with Alzheimer's or a family history of Alzheimer's. At one time I was interested in getting genetically tested, but my doctor was not encouraging the idea.
Form a plan to reach out to religious groups. Often these groups comprise altruistic, compassionate persons who want to make a difference in their communities and world, and who want to support organizations that also have that aim. Ask to speak to interfaith groups such as local Ministerial Alliance and Church Women United meetings. Ask to speak to individual denominational meetings (although I suspect the interfaith ...more »
A preliminary ALZ test could be part of the HS testing. Early onset could perhaps be more easily identified. ALZ awareness would also be enhanced.