Optimizing NIA’s Eureka Prize Competition Topic

Tag along Health Record (ipad, chromebook, like devices)

With most providers utilizing several different electronic health records and results from visits not share in the appropriate time frame. Or one shared patient portal related to his/her Alzheimer appointment. Recently has to take my family member to an urgent care facility as her PCP doesn't have weekend hours and we were at this appointment for five hours. My family member was severely dehydrated and required an ...more »

Submitted by (@dlorick)

Voting

7 votes

Optimizing NIA’s Eureka Prize Competition Topic

Connecting Medical Records

This past week I went in search of a physician who could assist me with a cognitive assessment in Nassau County. I reached out to one of my Geriatricians in the county who was immediately able to access my client's records, see his history and refer me to the appropriate Neuropsychologist. While I'm sure connecting records on a national level may be a daunting task - this process worked so expeditiously that I believe ...more »

Submitted by

Voting

8 votes

Cultivating Recruitment Science

My dissertation: identifying multi-level factors affecting ADRD clinical trial enrollment

The goal of my dissertation is to identify the policy, system, organizational, and personal factors that facilitate, bar, and motivate ADRD community members to participate in clinical trials. My first stage is establishing a community advisory board comprised of ADRD professionals (clinicians, investigators/research assistants, and advocates) and people with ADRD and their care partners (including Black/African-American ...more »

Submitted by (@nbour4)

Voting

3 votes

Optimizing Clinical Studies Recruitment

Create a dedicated Alzheimers trial databank!

A dedicated databank should be created for those interested in Alzheimers trials. If the program could incorporate data mining, where information entered by the neurologist could instantly exclude people from certain trials but include them for others. If the program could, instantly, populate a list of possible trials in which patients met inclusion criteria, then patients and their families could research which of ...more »

Submitted by (@prospectorky)

Voting

40 votes

Cultivating Recruitment Science

Recruitment funnel

It strikes me that recruiting for trials is very similar to the process used to market any product or service. I really recommend engaging a strong marketing partner. It's all about the funnel. First, identifying the target market (who do we want to recruit), then determining how to best reach them. In order to get one person out the end of the funnel (meaning into a clinical study), how many need to be "interested" ...more »

Submitted by

Voting

11 votes

Raising Awareness

Marketing tactics: Building audience trust

The 2017 Edelman Trust Barometer results state that more than 50% of global survey respondents say individuals are more believable than institutions. For the first time in history, "A person like you" was ranked as credible as a technical or academic expert on any given topic, and more credible than a CEO or government official. What does that mean when marketing to audiences to encourage them to participate in clinical ...more »

Submitted by (@juebelhack)

Voting

11 votes

Raising Awareness

Develop information campaign for elder communities

Continuing care communities would be a great place to focus an informational campaign on participation in research. I cant say that I have seen anything in my mothers community. In those communities there are people in all stages of mental capacities, and people who have friends at all stages. It seems like there is an opportunity for a culture shift to making participation in research more of the norm than the exception. ...more »

Submitted by

Voting

28 votes

Optimizing Clinical Studies Recruitment

Improve the health literacy skills of research teams

Clear communication through the best evidence-based practices of health literacy are critical to the success and sustainability of clinical trials and science in general. The vast amount of focus in the field of health literacy has been on identifying deficits of health literacy in the general population. However, increasingly the field is waking up to the reality that barriers are set by health professionals - including ...more »

Submitted by (@apleasant)

Voting

8 votes

Building Relationships with Local Communities

Recruitment and retention of minority persons

True commitment to engaging, recruiting and retaining members of minority or underrepresented populations in Alzheimer's research, could be demonstrated by ensuring that clinical investigators,"steering committees"and research teams are consistently representative. Strategies that have proven successful, though perhaps more labor and cost intensive, should be promoted. Building enduring relationships in minority communities ...more »

Submitted by

Voting

9 votes

Optimizing Clinical Studies Recruitment

Make the Recruitment and Retention plan an intrinsic part of the study's methodology

My humble opinion is to make the Recruitment and Retention plan an intrinsic part of the study's methodology. It is important to perhaps run focus groups prior to developing this phase both with the potential participants, and also with their service providers. We need to take into account not only a participant's race, ethnicity, SES, culture in general, but also historical factors, and their ideas and stigmas about ...more »

Submitted by

Voting

8 votes

Optimizing Clinical Studies Recruitment

Approaches and tools for recruitment and adherence

Design a Study Participant Health Passport to be given to research participants after they complete the study. They can use the Health Passport to help in self-health management and control as well as to use as a communication tool between the participants and their primary care physicians. The Health Passport will list all the study laboratory and testing results in an organized fashion with recommendations for wellness. ...more »

Submitted by (@patheyn)

Voting

11 votes