Optimizing NIA’s Eureka Prize Competition Topic

Coaching for Advanced Health Care Needs for Decision Making in Alzheimer’s Disease

There is a significant need to support patients with Alzheimer’s disease and related dementias and their families with health care planning towards the end of life. Notably, there is a need to provide consistent support and education during the planning process. Health care providers must do more to provide this needed education and support. One such idea is to improve the coordination of care via a high-level education ...more »

Submitted by (@karenoliviamoss)

Voting

7 votes

Optimizing NIA’s Eureka Prize Competition Topic

Patient-Friendly Search Tool to Find Azheimer's Clinical Trials

Currently, Clinicaltrials.gov is the database featuring all clinical trials. Unfortunately, it is written in clinical-speak, making it hard to locate and detemine what clinical trials are available for participation. I suggest a simple app be created that combs the Clinicaltrials.gov database for recruiting trials based on the stage of Alzheimer's disease. This would expedite the search and allow patients and caregivers ...more »

Submitted by (@carmen2u)

Voting

2 votes

Raising Awareness

Create & maintain database of patients/family members

Create and maintain a database of Alzheimer's patients and their family members. This will enable researchers to not only contact family with important research results but also to have the ability to follow this disease on a massive scale. Then maybe scientists and researchers will have a better opportunity to find trial participants with documented genetic links to this disease.

Submitted by (@uaauckmcc)

Voting

19 votes

Raising Awareness

Let's hear from the researchers on television!

Anyone, who has experienced the insult of Alzheimers, firsthand, would rather hear from doctors on the front lines, than from anyone else for their loved one's care. Researchers could use surrogates on television to relay their trial ideas for possible Alzheimers prevention, treatment or screening opportunities. That would, at least, drive interest toward, current, trial opportunities, given the legitimacy. Researchers ...more »

Submitted by (@prospectorky)

Voting

14 votes

Optimizing Clinical Studies Recruitment

Improve Recruitment

If you plan to conduct randomized clinical trial, allow clusters (e. g. people who carpool, caregiver, partner, friends). You may offer (a) the same treatment to everyone in the cluster, or (b) allow alternatives (e.g. for caregivers to attend a program for ‘caregivers’). I used (a) in a small RCT with older adults, and it worked perfect. I noticed that for some populations transportation is a big issue. Thus, depending ...more »

Submitted by (@ullmann)

Voting

25 votes

Optimizing Clinical Studies Recruitment

Provide more study locations or pay for travel

In order to attract more participants in studies, the studies must be located nearby. Traveling with a person with Alzheimer's disease can be difficult and complicated, especially in the moderate and late stages of the disease. If it is impossible to have the studies available in more locations, then the study should include transportation, food, and lodging as appropriate. Many people with Alzheimer's disease and ...more »

Submitted by

Voting

126 votes