(@wxmedinc)

Optimizing NIA’s Eureka Prize Competition Topic

The Patient and The Weather

Our group of meteorologists and physicians have been researching the relationship of real-time weather and human health. We have found very strong relationships between several ongoing health concerns. We believe that using wearables, looking at patient databases of actions, medicine use, and emotion, we can co-relate with weather data. With that, we can actually predict some actions of risk. Weather impacts every aspect ...more »

Voting

1 vote

Optimizing NIA’s Eureka Prize Competition Topic

Caregivers need better transfer technology to make ADLs faster/safer for dementia patients

Suggestion category: Low-cost innovations to improve AD/ADRD care. Reason for entry: While the "ideas" site is for RFIs about the best ways to structure and frame the NIA's Eureka grant, this "application-like" idea attempts to motivate the NIA to focus the grant on gaps in assistive technology which make care giving challenging and unnecessarily costly. Drug therapies and more recently Internet-based information systems ...more »

Voting

5 votes
(@dlorick)

Optimizing NIA’s Eureka Prize Competition Topic

Tag along Health Record (ipad, chromebook, like devices)

With most providers utilizing several different electronic health records and results from visits not share in the appropriate time frame. Or one shared patient portal related to his/her Alzheimer appointment. Recently has to take my family member to an urgent care facility as her PCP doesn't have weekend hours and we were at this appointment for five hours. My family member was severely dehydrated and required an ...more »

Voting

7 votes
(@patricia.a.elkins)

Optimizing Clinical Studies Recruitment

Protecting the anonymity of volunteers

Clinical trial data is widely considered "safe" data and individuals who join a trial may want their identity protected. However, for trials administered through individual doctor's offices or small clinics, the identity of people may be held in office computers. I suggest that a highly secure IT solution for protecting identity at this level be sought.

Voting

5 votes
(@patricia.a.elkins)

Optimizing Clinical Studies Recruitment

Match volunteers to act as "caretakers" for the clinical visits

It can be difficult for a healthy individual to join a trial when their spouse works full time. Not only does the person have to take time from work which they may be very motivated to do, but it is very restrictive to have to have someone who doesn't work full time available to go to every appointment with them.

Voting

4 votes
(@spikul)

Optimizing Clinical Studies Recruitment

See Something Say Something - Non Drug Studies that examine what we observe daily.

So many times the research that is being done does not reflect what we are observing. Everyday caregivers see so much more than what is being researched. If you include in the research what we observe, more of us will support what you are trying to test.. For example one of my clients has absolutely normal brain function after major surgery. This happens every time she goes under anesthesia. The hospital staff ...more »

Voting

10 votes
(@bamagang4)

Optimizing Clinical Studies Recruitment

NURSING HOME

My wife was diagnosed with Alzheimer's at the age of 61. She's had it for 8 years and has been living in a nursing home for 3 years. I think a nursing home would be an ideal location for a clinical trial. You have a controlled environment and constant monitoring of the patients by registered nurses and CNAs. The nurses and CNAs could help in the clinical trials by administering any medications or procedures involved ...more »

Voting

32 votes

Optimizing Clinical Studies Recruitment

current medications eliminating us from study

My husband and I recently volunteered for a long term Alzheimers study. We were both found to be not eligible due to current medications we take. We each take 1 med which is not related to Alzheimers or dementia. We are in our late 60's. most people our age are on some type of medication. I think it would enrich the study to be able to include patients who are currently taking medications that are commonly taken ...more »

Voting

30 votes
(@renvan)

Developing Data, Tracking Progress

Start collecting data of family groups with dementia in the family

My Mother was diagnosed with dementia 7 years ago. Her mother had dementia as did all her mother's 10 siblings. My Grandfather on my paternal side had dementia. I was 31 years old when my Mother was diagnosed and started looking for a study that wanted to look at younger people who didn't show signs of dementia, but had a history of dementia in their family, but I haven't found one yet. I have dementia on my maternal ...more »

Voting

44 votes
(@jal4jyl)

Enhancing Study Site Capacity

Use Technology to Allow in-Home Study Participation

Many, if not most, folks have access to the internet and can provide their input electronically, provided the study is designed to allow use of multiple platforms and methods. As part of a clinical trial I've been asked to join some cognitive studies on-line. However, the software allows only for touchscreen and apparently doesn't support Mozilla Firefox. A study whose design incorporates a range of input capabilities ...more »

Voting

34 votes
(@uaauckmcc)

Raising Awareness

Create & maintain database of patients/family members

Create and maintain a database of Alzheimer's patients and their family members. This will enable researchers to not only contact family with important research results but also to have the ability to follow this disease on a massive scale. Then maybe scientists and researchers will have a better opportunity to find trial participants with documented genetic links to this disease.

Voting

19 votes
(@hinckleybob)

Building Relationships with Local Communities

Employ Local VA Medical facilities

The VA provides 1741 domestic medical facilities with some degree of mental health and/or primary care provided to veterans and qualifying family members. Eight conditions are targeted in Mental Health, but not Alzheimer's. However, screening for dementia is offered, so could be a tapped as a source of recruitment for research. A cursory review of the attached report appears to include any efforts aimed at a large population ...more »

Voting

5 votes