Suggestion category: Low-cost innovations to improve AD/ADRD care. Reason for entry: While the "ideas" site is for RFIs about the best ways to structure and frame the NIA's Eureka grant, this "application-like" idea attempts to motivate the NIA to focus the grant on gaps in assistive technology which make care giving challenging and unnecessarily costly. Drug therapies and more recently Internet-based information systems ...more »
Physicians often do not tell patients they are diagnosed with dementia or Alzheimer's disease (AD), yet it might be stated in medical records. They don't want to burden families, so then they don't even diagnose patients with AD/dementia. Patients are hesitant in seeking information, services, or a diagnosis and important discussion about signs/symptoms of AD/dementia with a doctor possibly because no protections are ...more »
Develop strategy to evaluate and reduce implicit bias in the workplace: Assess and quantify implicit bias at the academic and community research sites: operationalize the metrics and the approach to meet this goal. Assess diversity of study staff, researchers, and principal investigators. Identify and provide resources to facilitate this assessment. Identify existing resources for cultural competency training at the home ...more »
Identify ways to expose study staff to life with dementia in the target community (e.g. Wash U Duo Program). Identify ways to include those living with dementia on the study staff, Advisory Boards, and local engagement teams.
This could include: 1) Identifying the project’s target populations and develop a staffing and outreach strategy that is appropriately sensitive to this goal. 2) Developing employment descriptions that capture relevant experiences with the target communities and specialized skills (e.g. language facility, familiarity with the community). 3) Identifying opportunities to leverage staffing resources from other academic ...more »
Develop nimble staffing models to respond to fluctuations in recruitment needs and to minimize staff burden and risk of burnout during periods of heavy enrollment.
Provide viable career paths and opportunities for professional advancement for all staff in the recruitment workforce. For example, develop clinical research tenure tracks and create awards to recognize clinical trials and studies excellence, including consideration of listing top recruitment staff as authors in research papers.
Build the cost of full-time recruitment staff or a team into grant application budgets. Hire at each site or cluster of sites a recruiter or recruitment team that includes backgrounds in public health marketing and outreach, as well as those with skills in recruiting families who are experiencing cognitive decline in a loved one. Support site-level efforts to retain experienced coordinators, raters, regulatory staff, ...more »
Add local clinicians to site study staff to promote familiarity and community partnership.