Currently, Clinicaltrials.gov is the database featuring all clinical trials. Unfortunately, it is written in clinical-speak, making it hard to locate and detemine what clinical trials are available for participation. I suggest a simple app be created that combs the Clinicaltrials.gov database for recruiting trials based on the stage of Alzheimer's disease. This would expedite the search and allow patients and caregivers... more »
Suggestion category: Low-cost innovations to improve AD/ADRD care. Reason for entry: While the "ideas" site is for RFIs about the best ways to structure and frame the NIA's Eureka grant, this "application-like" idea attempts to motivate the NIA to focus the grant on gaps in assistive technology which make care giving challenging and unnecessarily costly. Drug therapies and more recently Internet-based information systems... more »
With most providers utilizing several different electronic health records and results from visits not share in the appropriate time frame. Or one shared patient portal related to his/her Alzheimer appointment. Recently has to take my family member to an urgent care facility as her PCP doesn't have weekend hours and we were at this appointment for five hours. My family member was severely dehydrated and required an... more »
Just like we see in drug stores and some big box stores what about a chair with a touch screen? The participant sits down, accepts the terms, and begins the test. It could be a condensed set of questions that screen for early signs of cognitive decline with a score at the end. The constraints could regard age, or showing ID to a pharmacist first without having to enter identifying information in the "data chair". A... more »
The testing that is available presently is for identify mild, moderate, or advanced ALZ. There have recently been limited research to see if the sooner a person is identified and treatment begins the slower the disease progresses.
Need research to develop tests to identify earlier symptoms of the disease.
Develop an app where you currate all of the information related to clinical trials. You can then filter the information by specific conditions, location, etc. Users would sign up for the app by providing information on the patient's situation and the app should be able to match them to available studies. App could be promoted on social media by targeting users of FB based on their age, gender, interests, pages they... more »
Offer evidence based education tools for cognitive health to the public -- most people are naturally curious about their brains, and would appreciate a standardized education/feedback approach to understanding the range of modifiable & non-modifiable factors that can influence dementia risk. Examples include: Health Factors: hypertension, cardiovascular disease, diabetes type 2, concussion/head injury history, etc.... more »
Hodges' model is a generic framework that facilitates problem solving, assessment and reflection. Developed in healthcare the model can help support person-centered care, holistic care - that is paying attention to mental AND physical health, the need for integrated care. The model can be used by one person or a group on a flipchart, paper... for brainstorming. The model's four care domains includes a POLITICAL and SOCIAL... more »
I've signed up for several studies and have found it off-putting that each time, I'm asked to fill out the same ream of paperwork—probably five or more double-sided sheets. When I explain that they already have all this information on me, they just say, "Sorry, each study requires its own forms." I point out that they could keep a basic set on file and give a copy to each study, which could then ask for any extra particulars,... more »
HealthIT policy makers are encouraging the development of apps that allow patients to download all their medical records into one location fully under their control. In January 2019, a law becomes effective that requires healthcare organizations to allow patients to use any app of their choice to download their records. This new technology and law will change healthcare, empowering patients to gather and share their data... more »
To motivate participation in clinical research, let's engage the public to become educated and informed partners with a tangible stake in the search for a cure. Taking a page from the fight against Polio, when millions of ordinary Americans became partners in the search for a cure, by mailing in their 'dimes' to fund research, our startup InvestAcure, www.investacure.com, is building an investment platform to enable those... more »
With each successful clinical study recruitment effort, the lessons learned should be added to a national list of best practices. The same goes for unsuccessful recruitment efforts in discovering what did not work and why. These best practices must be shared online in a way that is easily searchable (e.g. recruitment promotion, study materials, phone screening, etc.) so that study teams can create their plan using the... more »
Build on targeted advertising and popular social media platforms to engage families and communities about Alzheimer’s and dementia, particularly to address local communities’ fears or myths.
Utilize multi-media and geofencing technology when/where possible to deliver dementia-related and clinical trial training to individuals and their families. Ensure education-based technology is user- and mobile-friendly.
Leverage a broad spectrum of interactive communication technologies, particularly for rural populations and individuals living alone.