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Ideas Contributed [ 17 ] [+]
Explore the feasibility of placing amyloid PET scanners in optimal locations and returning results to local sites so investigators can pre-identify suitable candidates. Such an approach might also be applied to screenings and studies which require lumbar punctures. Devote resources to identifying people at risk earlier in the disease process (e.g., genetic, biomarker, clinical, demographic).
Consider collaborating with existing registry programs or creating local registries to find potential volunteers. Incorporate trial-ready cohort programs, such as TRC-PAD and EPAD, into the screening model as a method of high-efficiency enrollment.
Establish a community screening center or offer a financial incentive to sites that can pre-screen for studies beyond their own investigations. Additional required informed consents should apply to all disease stages and trial interventions; locate such sites near principal investigator sites.
Run multiple, complementary studies at a site so that screening efforts are not specific to one trial and can offer more than one research participation option for many volunteers, such as those at varying stages of disease.
Support site collaboration and communication around site-level recruitment, including the use of public-private partnerships with support from industry, to link local sites to promote this kind of effort. Fund trial or site-agnostic outreach efforts. Allow sites to use funding from a single sponsor to help support recruitment for multiple studies.
Offer community programs not targeted specifically to research recruitment (e.g., brain health/fitness, cardiovascular/diabetes risk, and memory screening). Ensure that recruitment staff connect with families and potential participants before discussing research. Ensure when feasible that a budget and plan exist to expand a site’s capacity to serve the community as a resource.
Develop nimble staffing models to respond to fluctuations in recruitment needs and to minimize staff burden and risk of burnout during periods of heavy enrollment.
Invest in creating a community advisory board as part of the site team to help guide recruitment.
Build the cost of full-time recruitment staff or a team into grant application budgets. Hire at each site or cluster of sites a recruiter or recruitment team that includes backgrounds in public health marketing and outreach, as well as those with skills in recruiting families who are experiencing cognitive decline in a loved one. Support site-level efforts to retain experienced coordinators, raters, regulatory staff, ...more »
Provide viable career paths and opportunities for professional advancement for all staff in the recruitment workforce. For example, develop clinical research tenure tracks and create awards to recognize clinical trials and studies excellence, including consideration of listing top recruitment staff as authors in research papers.
Fiscally reward high-enrolling sites (e.g., cover start-up costs, set enrollment targets from the outset, and offer financial gain for reaching targets).
Invest in facilities to accommodate greater enrollment (e.g., ensure adequate space; equipment; and services such as pharmacy, lab, radiology, information technology support).