Badges [ 2 ] [-]
Memberships [ 1 ] [+]
Activity Stream [+]
Ideas Contributed [ 38 ] [+]
Consider offering individualized research feedback at the end of the study (or at regular intervals), such as z-scored cognitive data, so that participants may understand how they have performed.
Identify goals for the participant relationship maintenance program (e.g., monthly contact to show continued appreciation), and strategies to accomplish (e.g., luncheons, personal notes). Host at least annual events summarizing research and thanking current research participants and their families / kin structure
Provide participants with individualized and genuine attention and demonstrate commitment to ongoing outreach. Enlist a research navigator, ideally from local or targeted community, to assist with recruitment, and assist participants through all phases of screening, enrollment, and research.
Identify ways to expose study staff to life with dementia in the target community (e.g. Wash U Duo Program). Identify ways to include those living with dementia on the study staff, Advisory Boards, and local engagement teams.
Develop strategy to evaluate and reduce implicit bias in the workplace: Assess and quantify implicit bias at the academic and community research sites: operationalize the metrics and the approach to meet this goal. Assess diversity of study staff, researchers, and principal investigators. Identify and provide resources to facilitate this assessment. Identify existing resources for cultural competency training at the home ...more »
Work with healthcare systems and providers to create customized research referral links and alerts through the electronic health record (EHR) system. Provide feedback to primary care providers regarding their patients who are enrolled in studies, and updates on scientific advances. Develop strategies to include providers in the planning of research studies so that they are partners, not just potential sources of referrals. ...more »
Build on targeted advertising and popular social media platforms to engage families and communities about Alzheimer’s and dementia, particularly to address local communities’ fears or myths.
Reach out to trusted advisors and potential participants. Build a contact database of community organizations, physicians, and individuals to facilitate regular correspondence. Develop a regularly scheduled email or e-newsletter campaign to provide educational and event information on cognitive health, dementia, and clinical trial topics. Create regular (e.g., quarterly) information sessions on research opportunities ...more »
Build time and resources for community engagement, marketing, outreach and education into recruitment plans and budget during grant-writing phase.
Train and certify champions to discuss clinical trials and research within communities. Create a bureau of speakers, ideally well-suited to cultural needs of the local community, to provide community education and training for clinicians and other healthcare providers. Ensure that messaging is culturally and linguistically appropriate for targeted audience, as similar language may be interpreted radically differently ...more »
Utilize multi-media and geofencing technology when/where possible to deliver dementia-related and clinical trial training to individuals and their families. Ensure education-based technology is user- and mobile-friendly.
Utilize community events to increase health literacy (e.g., lunch and learn series, lay presentations, memory screening events, town halls). Build events for families rather than restricting to older adults. Offer tours of the research space after introducing concepts of research into the community. Address community concerns and barriers to participation; directly address elephants in the room. Feature local voices of ...more »