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To ease the transportation burden on patients, perhaps a carpooling system could be devised to pick people up within local communities and provide transport to sites. The social interaction and support + accountability of showing up for a pre-scheduled ride might help improve engagement, retention, and interest in signing up for a study. Additionally, this might reduce the burden on the caregiver to take care of errands/housework ...more »
For people curious about what a trial is like, something offering peer reviews of the experience would be great. It could enable: - Easy ways for participants to provide feedback on their experience and how it could be enhanced - Forums for participants to speak to each other and share tips and tricks about how to navigate difficulties (e.g., navigating logistics of getting to the site) - Transparent reviews of the trial ...more »
For middle-aged and elderly there are logistics/time demands that might make participation a low priority. BUT for the younger generation concerned about their parents and grandparents they might be a helpful beacon for awareness raising activities such as: visiting local elderly homes/communities/events; creating and distributing outreach campaign materials; making trial participation "cool" via stickers/buttons that ...more »
To help reduce stigma/concern about enrollment, current clinical trial participants could opt-in to being a peer buddy to a potential participant/caregiver who is thinking about enrolling. They could answer questions/concerns, and if they end up joining the trial they can be an ongoing source of support to stay engaged.